Neurotransmitters are Bastards

At one point in my life I considered myself pretty darn smart. I thought I could do just about anything I set my mind to and thought of myself as a “problem solver”. What I didn’t know was how much I was just banging my head against walls of my own creation. Those “problems” were often just the consequences of what I now understand to be some fairly severe issues with being an untreated, unregulated bipolar human. From my anger issues to my impulse control there was always some self-sabotage that was happening at any given moment in my life. The roller-coaster that has been my emotional life has been an exhausting, and often, terrifying ride. (For me as well as everyone that knows me)

This whole blog was started as a way to chronicle my life of being bipolar and the ride that is having a brain that… just …. well – vacillates (LOL the understatement of the week) and more importantly my work to accept and work to be more regulated. I’ve talked about my relationship with being bipolar and how part of that rollercoaster has simply been my own understanding and acceptance of the diagnosis and its ramifications and implications on my life, actions, personality, and choices. What I’m trying to suss out is what is ME, what is just some haywire neurotransmitter, what is the trauma, and what are the consequences of my actions. And recently I had a crash course in dealing with neurotransmitters gone wild – it was so not spring break worthy. That tale is one of medication reactions that I may not have the energy to fully express because I’m still trying to recover from them. (I think I’m on day three of writing this post, which sadly doesn’t mean it’s great, just that it has taken that much for me to focus long enough to do it. UGH)

OK but this time it really wasn’t my fault. No really LOL, March 8th, 2022 I started taking latuda to treat my bipolar depression. It was one of my longest, deepest depressions of my life. (and yes that is saying something) And I had been doing all this great work with “The Artist’s Way” (and my own subsequent work to build a more non-theistic and neurodiverse accessible version “The Way of your Inner Voice” which will be starting up again in August – get on the email list to get the deets: Is That My Voice Newsletter Signup ) For you see doing that work gave me the courage and the drive to finally face my demons and work on getting stable enough to do the things I generally just dream about.
Bipolar can be degenerative and I realized that the longer I avoided the hard work the worse it would be for me. So here I am battling it out with neurotransmitters that are being poked and prodded by medications and the results are sometimes nearly unmanageable. And that is where I have been the last week. Fighting side effects that have sent me into outrageous panic attacks with physical ramifications and a few times I was ready to go to the hospital because it got bad enough I was worried I would snap. But for once in my life long journey of dealing with this I got HELP!!! At first I just suffered through it, (if I’m 100% honest part of me blames myself and sees myself as “weak” and a “failure” for not being able to fix it on my own, mixed in with some deep fears about the medical establishment, I’m sure that’s a few therapy sessions deep) but finally I got to talk to my psychiatrist and I was properly, but kindly, admonished for being stubborn. I have some new resources should it get that bad again. And overall I felt heard, believed, and cared for. If I wasn’t such a giant ball of stress waiting for the next wave of crazy I’d probably be crying with joy over that victory. Maybe when I stabilize a bit more I’ll have a good cathartic cry wherein I relive all the times I was no heard, believed, or supported. But right now I’m too tired. I’m fairly heavily medicated in the short term to give my body time to adjust to having feelings again…those feelings really agitate me 😛

Dear Jibbers Crabst will I ever get to the point? This has been a hell of a week with panic attacks, dives into nihilism, a little self pity, and a whole lot of fight to not give up. But we make our adjustments. I share my thoughts with my therapist and I keep moving forward. Slowly like an ancient world turtle slow I keep doing the work, #fillingintheforam #nevergiveupneversurrender
And maybe when those neurotransmitters get feisty find your way of laughing at the folly at being a giant chemistry set with emotions. Drink your water. Get your sunshine. Write sad poetry. Rinse. Repeat. And as I struggle with my side effects NOFX sometimes lives rent free in my head.

*I 100% believe in the purpose and efficacy of modern medicine when applied with conscientiousness and while fully aware of its limits and side-effects. I believe when can use modern and traditional healing modalities concurrently to support whole mind-body healing that accounts for individual needs, differences, and experiences. To eschew either is to our peril.

Rediscovered Poetry – Come out and Play

This time I am not running away.

From a Facebook post from – Feb 2 2021 in our “The Way of Your Inner Voice” group, this was written during the very first go of “The Artist’s Way”. I think I’ve been here before, but I always panic and re-lock the door. This time I am not running away. I’m still trying to break free, still pushing on that door, battling all the blocks. Here’s what I wrote on the post – I’m remembering now that writing them is easy the work is the sharing. Because at the end of the day that’s what this is all about, being actually seen and heard. What are you holding in that needs to get expressed? Perhaps your Inner Voice is calling to you as well?

Come out and Play – one shot poem written Feb 2021

There is a knocking

Inside my head

At first just a rapping

A gentle tapping

grows more insistent

Each passing day

a sense of wonder

trapped inside a box

Buried under fears

wrapped in layers of shame

it grows louder though

more insistent, consistent

let me out to play

becoming a banging

begging for attention

a chance to spread

its wings

I try to keep it closed

It’s very wild and

Unpredictable

It always wants to play

It isn’t very grown-up

And others say it’s wrong

But if this racket keeps up

My wall, my resolve

may not stay as strong

I wonder what will happen

If I let it out to play

Alexander Milov’s sculpture, Love, appeared in the 2015 Burning Man festival and is so much an image that makes me think of our Inner Voice work and this ongoing struggle to know and let the real and best me out to live, love, work, and most importantly….PLAY!

Life is what happens…

I had a series of unfortunate events (hey mr. Lemony Snicket it happens to all of us) Nothing earth shattering in and of themselves but combined with my current mental health work it sent me skittering off the rails and barely able to handle day to day living let alone making actual progress.

While you make plans.

I knew it had been awhile since I had written but I had no idea it had been over 10 days :O Talk about life happening. I had a series of unfortunate events (hey mr. Lemony Snicket it happens to all of us) Nothing earth shattering in and of themselves but combined with my current mental health work it sent me skittering off the rails and barely able to handle day to day living let alone making actual progress. While I’m focusing mainly on controlling, understanding, and working WITH my bipolar nature I have other health issues I am trying to resolve as well. One of them has been my ongoing allergy/sinus kerfuffle issues. This led to a CT scan that showed my nasal passages are a wreck and that I’ve been living with a chronic sinus infection for probably years – yippee kay yay MFs – so I went on a massive antibiotic course along with a week of prednisone. Can I just say that adding steroids to your body while you are trying to get to an even place emotionally is not something I recommend to anyone. I am also notoriously extra f-ing sensitive to everything (my personality is tough my body is weak sauce LOL ) and antibiotics throw my whole digestive system into cement mixer mode which seriously impacts my ability to think straight. Just as I was coming off the prednisone I had my scheduled 2nd Covid booster AND my Shingrix(TM) Shingles vaccine…it was on the books and I didn’t think much of it. HOLY AUTOIMMUNE REACTIONS BATMAN. Now I don’t think the covid booster did much to me, I’ve already had covid and all the boosters so I feel like my immune system is pretty on board with that whole thing and never did any other of the shots HURT. But this shingles vax? OH BOY. (I got the new shingrix vax…see pic for info)

Y’all this shit KNOCKED ME ON MY BUTT for close to a week. And it hit FAST. Within 1/2 hour I was fatigued, feverish, dizzy…it hit so hard so fast I didn’t even realize it was the shot at first. I mean I couldn’t imagine that my immune system would react that quickly and severely. Boy was I in for a ride. My arm was on fire, swollen, red – it looked and felt like a softball pitch had hit me at full speed. My tattoos all got raised (a clear indication that my immune system is on high alert and a reminder that they probably aren’t all that healthy but that’s a whole other oprah) and I was tired, I mean, as someone with CFS I thought I knew tired but my idea of tired LAUGHED at the body fatigue that overtook me.
I was still faithfully taking my antibiotics so I was still dealing with cement mixer digestion as well, it is an understatement to say I was not running on full cylinders. So writing was at the bottom of the list. I had ideas a few days but couldn’t hold a thought for longer than like a minute.

So this may be the world’s most boring blog post but it’s a reminder that sometimes our best intentions are sidetracked and that is not a reason to give up or surrender. (#nevergiveupneversurrender) All things are temporary, #thistooshallpass is such a great thing to remember. So past me probably would have given up and said some dumb things like “well I ruined that”, “I can never catch-up” (to the arbitrary goal I set), “here’s proof that I’m a loser”, and other fun downer thoughts. But new me post #theartistsway me knows that you have to get back up and just keep #fillingintheform and one thing that kept me going was no matter what I wrote my #morningpages and that kept me from losing the thread entirely. It matters.

So that’s it my totally boring, non-sequitur blog post that serves mostly to remind myself that I can keep getting back up. And when life happens plans are just delayed or mutated not destroyed. What have you let lapse that you could pick back up? It’s never too late to start again.

Is Aminda on the bus…childhood bullying memories

My morning writing spat up some memories this week and I realized I’ve been writing my “origin” story from the point of my husband’s death. But let’s be real this all started at the beginning and just because I don’t want to relive or think about (or honestly remember much) from my childhood doesn’t mean it’s not important to this story.

I started writing this a week ago. That first paragraph was all I got out and then I haven’t been able to write more. It’s amazing to think how much of my childhood I just keep in a box and all the feelings associated with it I try to distance myself from them. I can feel my breath catch. I can feel my body curl in on itself. When I allow it to come over me I can feel the helplessness and the gnawing sense of other.

Does bipolar happen because of brain chemistry? are we born that way? or do the events of our lives push us and push us until our brains are wired a certain way. As I think about it I’ve never felt safe. Well that’s not true, a few moments here and there with Rob I felt safe, for a moment and that is perhaps why there is a before and after Rob. That all my childhood fears felt put away when I was seen, but they came roaring back with a vengeance. I see now it’s because the feeling was external and conditional. So that’s why I’m here on this journey working on making that feeling internal, from within so that no one can take it from me. But since I have so little experience with it, it continues to be elusive.

But I digress.

I was not a healthy child. Think some 80’s movie where there was a kid who had an inhaler and was the weakling – that was me. Only I was just a side character so I didn’t get a makeover montage. I was just odd and sick. I’ve come to understand that what I experienced was being seen as a moral failing for not being hale and hearty. I never had the energy other kids had. So much so that I knew early on something was wrong with me, but I was born in ’68 and went to school in the ’70s, and catholic school no less, so we didn’t have any idea how to help a kid with food allergies and who was too tired to function, even at the ripe age of 8. I had terrible IBS even back then, I woke up everyday with a stomach ache. I had so many stomach aches that they were treated like I was always faking and that set me up for a lifetime of not believing my body signals, but that’s for another post. All that is to set up that I was bullied for being meek and weak. And to understand that my sickliness was also making dealing with life already difficult. At home it was my dad abusing my mom and drunken fights but at Church we were the perfect family. I may never know if I was born healthy and the abusive stress is what caused me to be sick but either way I was not well. A pale, scrawny, asthma having, eye glass wearing, book reading outcast. And that would have been fine if people could have at least been understanding or kind, but no as I said, moral failing. And it wasn’t just kids that were mean. I learned early that cruelty was not limited to a select few bullies and that even nice people will be awful in the right crowd. Sure I was bullied in school by the nuns for my left handedness and my general lack of vim, seriously berated for being pale and tired. Literally just made me laugh to think of it, how insane is it to make fun of someone for being ill, no wonder I have struggled with accepting it and now just want everyone to know. I want to heal that wound and feel like people give a crap. UGH again I digress. It seems so silly now, a trifling. Yet for me, in the first through fifth grades riding the bus was one of the greatest sources of trauma for me. It might be tied with my P.E. teacher but we’ll leave Mrs. Larimer out of this one and just focus on the bus driver. I’m not 100% sure what her name was, as I called her “bulldozer” in my head. Was her name Dozer or Dosier? who knows, the truth is lost to time. I only know she was not a happy person and she allowed me to be harrassed so much on the bus, even taking part on occasion. Like maybe Matt and Trey had a similar experience?

From the classics like tripping, stealing of items and playing keep away, and no available seat gaffs to the more upsetting gum in the hair, and ruined homework, riding the bus was a nightmare. Made extra so because I was beyond timid and being noticed was its own hell and somehow that was like a flame and all the bullies moths. Sigh. I will never understand the urge to pick on the weakest one. All that I suffered with as much dignity as a sad victorian child could. It was the bus stop fiascos that truly gave me the anxiety. Now I gave you all the lead up about being sickly and tired. Now put me in a stressful situation everyday and throw in my sensitive stomach and hypersensitivity to smells and my bus rides were like a fugue state. I could barely function I was always so overwhelmed. And more often than not I would fall asleep. (I presume it was the beginnings of a strong flight/freeze response to stress) Now my bus driver decided to punish me as often as possible. She wouldn’t help me procure a seat up front where I wouldn’t be harassed or get as car sick. No she would watch the kids block the seats until I was in the back. So many times. I stopped crying and begging for help that seemed to only make her angrier. She would call me pity party princess. LOL I just remembered that, huh. Anyway if I fell asleep sometimes she would just drive past my stop and make me ride the whole route and drop me at a different stop on the way back making me walk further. (realizing now how much she endangered me) Sometimes she would get the kids to chant – “Is Aminda on the bus” on the way to my stop and then they would jeer and thrown things and call me names as I exited. Good times.

Now I can look back and see how tiny those things were individually. I can even understand that Ms. Bulldozer probably had her own trauma and reasons for being a complete a-hole to small children. Yet it doesn’t change that those daily interactions were a constant stressor on my tiny little pathetic nervous system. There was no relief. You didn’t admit weakness to the nuns, that brought down more wrath and punishment than help. And ya know the few times my mom got wind of anything hinky she was quick to defend me but she did it in way that always mortified me and generally had a backlash of being bullied harder. Now there is so much more history from St. Gregory’s. come to think of it all the people that were the worst to me where all the women in charge. It’s no wonder it took me years to trust women. Recently I’ve been wondering why I’m so sensitive and reactive and reliving/remembering my childhood reminds me that I was trained to be wary. It’s wired within me to be protective and scared. And my digestive system never did figure out how to life all that well.
Bullying is a health crisis. And make no mistake the “grown-ups” have always been as bad as the kids.

It was always a lie – song lyrics

If you want to heal your soul
threaten the status quo

TW: I am a recovering catholic. I do not mince words when it comes to the harm that I feel the church inflicted upon me as a child with my parents as willing participants. If you have a love of the church I’d just avoid my blog.

I have come to forgive my parents and some of the people involved in the soul-crushing that occurred to me during my eight years of catholic school and the thousands of hours of guilt-laden, fear-driven, terror-inducing instruction and messages I received in that institution. I am always endeavoring to accept those that still have faith and still support the church, but it isn’t always easy. It’s like watching your friends forgive your abuser and it is not for the faint of heart. I think the church should pay for my therapy and medication that’s how culpable it is in the mental anguish I struggle with every day. I am just now beginning to unravel the damage and I hope someday to scream punk rock versions of my feels. My FAULTY EARTH SUITS band name is ready for the right people to make my punk dreams come true 😀

What a fucking Lie

The church, what a fucking joke
the first in duplicity
saying they are there to save our souls
but their aim is to grind our bones
into the paste of mediocrity
into something safe for them and
their mountains of fear

Don’t think that
Don’t learn that
Don’t feel that
Kill the you that you know

The church, what a fucking hell
the thing that birthed my anger
that rages from the scars and terror
the wounds of words 
at every turn the pain reborn
the way they killed our joy
beating us into the mediocrity of homogeny

Don’t think that
Don’t ask that
Don’t dream that
Erase your individuality

The church what a fucking game
a way to kill your spirit
replace it with a god of lies
the god of men’s control
subjugated to their ways
they’ll grind you down
make you into a paste
to mold into something
knowable, controllable

Don’t think that
Don’t want that
Don’t look at that
Destroy the light within

We’ll take your hopes and dreams
and teach you that you’re wrong
and then we will take your money
and expect your worship in return
God’s plan for you is dead
we killed those parts of you
so we could feel safe
secure and unthreatened.

You traded our joy
for your control
and comfort

Don’t think that
Don’t be that
Don’t become more
How dare you be yourself

If you want to heal your soul
threaten the status quo

woman kneeling in the shadow of a church

Halfway Home – Rediscovered Poetry Break

But like a tap on the shoulder… a whisper in my ear…” just start” ….

From a Facebook post Jan 31st 2021 – Again I almost didn’t write. I wasn’t “in the right headspace” But like a tap on the shoulder… a whisper in my ear…” just start” the rules of the road say I don’t worry about quality…just quantity. And I’ll be honest I felt a little raw…(4 hours of improv class will do that) I was “drained”

but I opened up the page and just wrote… POEM. and well … here is another first draft poem

Halfway Home

There was a poem that as a child felt like home

Halfway down the stairs, it went

Not up or down

Away but here

It wrapped me in understanding

And made me feel less alone

I followed those words

To worlds made real

In chapters of mystery

In rhymes of fantasy

In the magic of fiction

Dreams seemed possible

The world felt welcoming

Each day I’d walk by that step

On the way to school

And I would lift my chin

Leave behind my sacred space

To battle with reality

But that step

It was always there

The words. The words were always there.

I’ve forgotten the words sometimes

But they, they have never forgotten me

The Princess and the Pea

As we say around here #BeYou #BeReal #BeExtra. Only when we are allowed to fully be ourselves can we find peace.

There are so many things that I have joked about in this lifetime that are turning out to be core truths about who I am and how I relate to the world. from “like all things I swing both ways” (hello bipolar/bisexuality) To “I’m a delicate f*cking flower” (Hello sensory processing sensitivity) It has also come into my understanding that the very things I feel shame over and have been ridiculed for are part of the very nature of my being. (OH wow self-worth much?) This is the basis for so many of our anxieties, for our depression, and certainly our unhealthy coping mechanisms. In the world of neurodiversity we refer to hiding our traits as masking (or camouflaging) . Coming to recognize that the stranger, the very things we are hiding away from others and ourselves, that is our inner truth, our inner voice. We’ve silenced so much of ourselves for so long, sometimes not on purpose but out of trauma, that we don’t even know ourselves, that is the feeling of unrest and discomfort that too many of us feel.

For me specifically this is my sensory/sensitivty levels. We didn’t have words for Sensory Processing issues when I was a child, heck we barely talked about ADHD or even spectrums of autism. Being born in the late 60’s I was in elementary school in the 70’s and to top it off I was in Catholic school – there was definitely no room for individuality in those halls. What I do remember more than anything is being bullied and teased for being shy, withdrawn, and SO SENSITIVE. It was said to me like a curse – you are just so sensitive. Too sensitive. And I learned to see it as a moral failing, a weakness, an assassination of my character. My mother gave to me a love of musical theatre and she introduced me to the fairy tale of the “princess and the pea” via “Once Upon a Mattress” and would call me Winnifred, later in life we have come to refer to me as a “delicate f*cking flower” because I can feel things, hear things, and definitely smell things that others can’t yet I’m tough and loud and brash. (spoiler alert I LEARNED to be those things to mask my too sensitive self.) Life has been, if nothing else, an assault to my senses from day one. It’s exhausting. Gee I wonder why I have chronic fatigue (my “shocked” face)

These days we also refer to my nose as the “super sniffer” (thanks Gus from Psych) but it’s not always cute in my life. It means when you use bounce on your clothes and I’m near you I get a headache and sometimes sick to my stomach. I am overpowered and smell things that others can’t,I’m like a canary in a coal mine all day every day, and honestly I thought I was losing my mind until an episode of castle taught me that hyperosmia is a real thing. (played by the ever glorious Stephnie Weir) Yeah I have genuinely lived my life presuming I was a bit crazy because no one else seemed to be troubled by the smells (sights, sounds, touch, emotions of others). I even inadvertenly self medicated as a smoker for years because that killed my smell and sometimes I still miss that part. Although once I got smoke free and could smell the smoke it is one of the most hated smells and I can smell it from 100 paces on you and everything you own – even if you have washed, breath minted, and spritzed. Sure the average person can smell strong smells, but I smell the faded ones and they effect me greatly. But the problem isn’t really the smelling or hearing that the TV is on, or the buzz of lights, or the way that lights hurt, or the fact that I can read a facial expression that no one else even saw – no it’s how people treat those of us who are more sensitive, that’s the real problem. Like we are making it up, or we need to “toughen” up. Knowing now that I literally feel different from other people is helping me get in touch with my true nature and rather than suppressing my feelings and reactions I’m learning to process them. (If you want to know more learn about HSP or SPS this person’s story is very similar to mine) I used to believe I was an “empath” but I now see that was just part of my sensitivity combined with hyper vigilance born of trauma. (spoiler alert a lot people are dishonest and think they are hiding their true feelings but some of us see that shit)

Trying to fit in is literally killing people. Want to understand the rise of auto-immunity, chronic fatigue, mental health issues? Take a look at how a faster, louder, brighter world is effecting 15-20% of us. It’s a evolutionary gift in the right circumstances but in a modern world it can be a real curse. Finding your place has to consider what works for you! Everyone has a sensitivity, I truly believe this and we beat it out of our children (especially our AMAB children), we cookie cutter it out of us in schools, we lose our super powers by seeing them as inconvenience or as wrong and “not normal”. But it’s our sensitivities, our uniqueness that guides us that makes us, well US. So the next time you feel you have to hide who you really are ask if that person, place, or activity is worth it. As we say around here #BeYou #BeReal #BeExtra. Only when we are allowed to fully be ourselves can we find peace. We are killing the very things that are our gifts. The world needs your love of your special interest (Hello Greta Thunberg) it needs your sensitivity. When we get in touch with that Inner Voice we can change the world and find happiness. Let’s stop chasing other people’s happiness and find our own. (spoiler alert you may need to unlearn some BS and you may need help, but that’s OK, listen. you know your truth. We just have to find a way to accept it and embrace it) End the epidemic of self-loathing that fuels so much hatred.